World Prematurity Day 2015

November 17th is World Prematurity Day. It is a day to raise awareness of the serious problem of premature birth. An estimated 15 million babies around the world are born too soon every year, and nearly one million of them die due to complications of preterm birth.

Around the world this day famous buildings are lit purple for world prematurity day tp raise awareness.

This last photo is taken in Budapest, at the Budapest Eye 🙂

 

Today I wore purple to honour World Prematurity Day.

Blackberry #2 was born on the 25th of november, 2012. His due date was January 31st, 2013. He was born at 30 weeks via emergency C-section due to a placental abruption. They said if I had arrived to the hospital 5 minutes later it would have been too late for him. He was born with and APGAR score of 9/10. He was 1560g and 40cm. Since I was under general anasthesia I did not see him, when he was born. He was taken to the NICU right away by an ambulance.

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He will turn 3 next week 🙂 He brings us such joy every day 🙂 He is very sassy, brave and very cute.

The Blackberry boys having brunch.

 

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Prematurity Awareness Month 30 Day Photo Challenge, Day 28

Day 28: Going Home

BB# 2 got to come home from the NICU after 51 days on january 15th, 2013.

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His empty incubator.

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The nurse dressing him up for the january cold.

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We didn’t have a preemie snow suit, so his snow suit was huge on him 🙂

If you would like to join in the challenge here are the details:

http://anotherdayinmommadise.wordpress.com/2014/11/01/prematurity-awareness-month-30-day-photo-challenge/

Happy Birthday to you, Blackberry #2!

On tuesday, november 25th, BB#2 turned 2!

This year his birthday was more enjoyable for him and for me too. Last year he was too small to understand this whole birthday business and I was still very emotional from the memories of his early arrival and everything that came with that. This year I could mostly focus on the celebration of his birthday without the bad memories, I tried to keep busy that day so most of the flash backs did not happen.

BB#2 got a dog cake this year. He really likes dogs, so that is why he had a dog themed birthday.

He recognized the dog on the cake and said: vau-vau 🙂

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He tried to blow out his candle:

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and he ate 2 pieces of cake. Marzipan covered, chocolate-banana cake 🙂

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He liked his presents: a fisher price remote control and a Lego duplo first garden:

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I cannot believe my 1560 g (3.4 lbs), 40 cm (15.7 inch) preemie baby

Grew into a 11 kg 190g (24.6 lbs) toddler who is 85 cm (33.4 inch) tall 🙂

I wish someone would have shown me back then a photo of him today 🙂

World Prematurity Day, 2014

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photo from facebook.

World Prematurity Day is on 17 November each year to raise awareness of preterm birth and the concerns of preterm babies and their families worldwide. Approximately 15 million babies are born preterm each year, accounting for about one in 10 of all babies born worldwide.

Today is the day to remember all the babies who were born too early.

Even though almost 2 years have passed, I still think about prematurity alot. It has, and is still affecting us, even after leaving the NICU.

On this day I am really thankful to all the doctors and nurses, who made it possible for Blackberry #2 to come home from the NICU after 51 days.

This year we celebrated by attending an event at the theater hosted by 2 of our city’s preemie foundations.

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BB#2 in a red sweater is getting his gift soap.

The beginning of the event was free. The kids could take a “behind the scenes” tour of the theater. We saw the orchestra pit, the hair and make-up room, and the stage ofcourse.

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Then from 5 pm, there was a musical show for kids, it was called Runaway Stars, the ticket prices were given to the preemie foundations. So after taking BB#2 home, BB#1 and I went back and watched the show. This was his first time at the theater, he really liked it.

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BB#1 waiting for the show to start.

2 photos from the show, both photos from the theater’s webpage, I don’t think it is allowed to take pictures.

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If you would like to read our preemie story, you can find it at:

https://theblackberryboys.wordpress.com/2013/11/18/world-prematurity-day/

Prematurity Awareness Month 30 Day Photo Challenge, Day 13

Day 13: Baby Sleeping

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In the first few weeks all BB#2 did was sleep. His favorite position to sleep (to this day) is on his stomach. Note all the hair on his little arm and back 🙂 He was like a werewolf 🙂 Luckily all that hair disappeared 🙂

If you would like to join in the challenge here are the details:

http://anotherdayinmommadise.wordpress.com/2014/11/01/prematurity-awareness-month-30-day-photo-challenge/

Prematurity Awareness Month 30 Day Photo Challenge, Day 9

Day 9: Tubes and Wires

This was after his CPAP was removed. He still had a feeding tube, a PICC line, and IV, and a pulse-oxymeter.

This is  Preemie diaper on him, still looking really huge on him.

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If you would like to join in the challenge here are the details:

http://anotherdayinmommadise.wordpress.com/2014/11/01/prematurity-awareness-month-30-day-photo-challenge/

Prematurity Awareness Month 30 Day Photo Challenge, Day 6

DAY 6: Food

While they’re in the NICU, premature babies have several milestones to meet before they can go home with their parents. Before NICU discharge, premature babies need to be able to breathe, eat, and keep their temperatures stable.

Breathe without oxygen: One of the first milestones that many premature babies meet is being able to keep their oxygen saturation high without needing extra oxygen or other respiratory support. Many preemies need some kind of respiratory support soon after birth. Some babies may only need extra oxygen for a short time, but others need it for longer. Babies who are very small or very early at birth are at risk for a chronic condition called BPD and may need extra oxygen even after they’re ready to go home.

Luckily we did not need to be intubated, even though I did not get any steroid shots before BB#2 was born. BB#2 did not get any surfactants either after he was born. He was on CPAP for a few days and after that he got oxygen into his incubator for a few weeks. And finally he was breathing on his own without any help, any plus oxygen. He did not develope BPD.

Maintain a stable temperature: Most premature babies need to sleep in an incubator to stay warm. Premature babies aren’t able to keep themselves warm. It is a milestone that is based on weight more than gestational age, and most babies are able to keep themselves warm by the time they weigh about 4 pounds.

Take all feedings by mouth: Premature babies are not as strong as full-term babies and aren’t able to coordinate sucking and swallowing until about 32 to 34 weeks gestational age. Most premature babies are nourished with TPN (total parenteral nutrition, a type of IV fluid that provides total nutrition to someone who cannot take any nourishment by mouth. TPN contains sugars, electrolytes, vitamins, proteins, and fats, and can supply all of the nutrients that the body needs. Premature babies often receive TPN while their intestines mature. The TPN will be given through an IV, an umbilical catheter, or a PICC line. When milk feedings are started, the amount of TPN that a baby receives will gradually be tapered down as the milk feedings are increased.) at first, and they are fed through a feeding tube until they’re strong enough to drink from the breast or from a bottle. Before babies can be discharged from the NICU, they should be eating from a bottle well enough that they are gaining weight steadily.

BB#2 had the most problems with feedings. He had a feeding tube for about 6 weeks, through which he got my breast milk that I pumped for him around the clock. He also received parenteral nutrition through his PICC line for weeks. In the begining he had problems with digesting my milk. He would get sick from it. So there would be days he did not get any milk, just the TPN. It was the most awful feeling that I would take him the milk and they would say he cannot be fed through his tube yet 😦 We had to run at this feeding issue 3x times before he finally stopped getting sick and could start getting my milk, but this took about the first 10 days of his life. They also started to investigate if he has NEC (Necrotizing enterocolitis, where portions of the bowel undergo necrosis (tissue death)). They said the x-ray did not prove this, and finally he overcame the problems and started digesting the milk.

Eventually he learned to take a bottle, and a few days before his discharge he started learning the art of breastfeeding, which he continued to do untill he was 9 months old. My milk however was not enough so we had to supplement with formula and pumped milk, so our feeding routine was a pain in the…. First measure baby, then breastfeed, measure baby again, calculate how much he ate, then make some formula, feed to baby. Then pump the remaining milk that he left inside, because he was too tired to work that hard 😦

So as you can see feeding preemies are not easy. Not easy for the baby, or the Mom or the doctors/nurses.

And still we came out lucky because after the initial problems we did not develop reflux or any oral aversions and we were not even colicky

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BB#2, 11 days old. You can see the feeding tube in his mouth and the TPN went into his arm. (not the one pictured, the other one).

If you would like to join in the challenge here are the details:

http://anotherdayinmommadise.wordpress.com/2014/11/01/prematurity-awareness-month-30-day-photo-challenge/