Prematurity Awareness Month 30 Day Photo Challenge, Day 30

Day 30: Today

Last day of the challenge.

BB#2 today. “Reading” one of his favorite books.

Today he learned a new word. He learned the name of the cartoon character Strawberry Shortcake, she is is called Eperke in hungarian. So today’s word is: Eperke. Yesterday he learned happy, in english πŸ™‚

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You can read about the challenge here:

http://anotherdayinmommadise.wordpress.com/2014/11/01/prematurity-awareness-month-30-day-photo-challenge/

Prematurity Awareness Month 30 Day Photo Challenge, Day 29

Day 29: Home

BB#2’s NICU discharge was a happy day πŸ™‚

Words cannot describe how good it felt to have him home. πŸ™‚

Also it was a little scary, not having a bunch of nurses and doctors around. I would always check if he was still breathing 😦

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BB#1 meeting his little borther for the first time. Poor thing had to wait 2 months to see his brother, since no kids were allowed in the NICU.

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Finally I could hold him whenever πŸ™‚

I am so skinny here from stress πŸ™‚

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Wasn’t he so cute ?

You can read about the challenge here:

http://anotherdayinmommadise.wordpress.com/2014/11/01/prematurity-awareness-month-30-day-photo-challenge/

Prematurity Awareness Month 30 Day Photo Challenge, Day 28

Day 28: Going Home

BB# 2 got to come home from the NICU after 51 days on january 15th, 2013.

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His empty incubator.

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The nurse dressing him up for the january cold.

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We didn’t have a preemie snow suit, so his snow suit was huge on him πŸ™‚

If you would like to join in the challenge here are the details:

http://anotherdayinmommadise.wordpress.com/2014/11/01/prematurity-awareness-month-30-day-photo-challenge/

Prematurity Awareness Month 30 Day Photo Challenge, Day 19 and 22

Day 19: Wide awake

I have one photo for both days πŸ™‚ He was about a month old when I could finally start seeing him awake πŸ™‚

Day 22: No tubes or wires

BB#2 was about 5 weeks old when he was finally without tubes or wires. But sadly this state only lasted a few days when he got an infection and was again full of tubes and wires 😦 But after overcoming the infection he was finally tube and wire free for good πŸ™‚

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If you would like to join in the challenge here are the details:

http://anotherdayinmommadise.wordpress.com/2014/11/01/prematurity-awareness-month-30-day-photo-challenge/

Prematurity Awareness Month 30 Day Photo Challenge, Day 13

Day 13: Baby Sleeping

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In the first few weeks all BB#2 did was sleep. His favorite position to sleep (to this day) is on his stomach. Note all the hair on his little arm and back πŸ™‚ He was like a werewolf πŸ™‚ Luckily all that hair disappeared πŸ™‚

If you would like to join in the challenge here are the details:

http://anotherdayinmommadise.wordpress.com/2014/11/01/prematurity-awareness-month-30-day-photo-challenge/

Prematurity Awareness Month 30 Day Photo Challenge, Day 10

Day 10: Momma and Baby

This was our first photo together. BB#2 was about 2 weeks old here. I look like crap here, but I guess not many people look good 2 weeks after birth with a baby in the NICU 😦

If you would like to join in the challenge here are the details:

http://anotherdayinmommadise.wordpress.com/2014/11/01/prematurity-awareness-month-30-day-photo-challenge/

Prematurity Awareness Month 30 Day Photo Challenge, Day 9

Day 9: Tubes and Wires

This was after his CPAP was removed. He still had a feeding tube, a PICC line, and IV, and a pulse-oxymeter.

This isΒ  Preemie diaper on him, still looking really huge on him.

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If you would like to join in the challenge here are the details:

http://anotherdayinmommadise.wordpress.com/2014/11/01/prematurity-awareness-month-30-day-photo-challenge/

Prematurity Awareness Month 30 Day Photo Challenge, Day 8

Day 8: Tiny toes

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This photo was taken after BB#2 came home. His little foot in BB#1’s hand πŸ™‚

When BB#2 was born, orfcourse he was very small, but his feet were big compared to the rest of him. His foot was the same size as his leg from his knee to his ankle πŸ™‚

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This a more painful photo. BB#2’s little toes in the NICU. They poked his little (big) toe so many times, it was usually purple 😦 He has little scars on his toes to remind him 😦

If you would like to join in the challenge here are the details:

http://anotherdayinmommadise.wordpress.com/2014/11/01/prematurity-awareness-month-30-day-photo-challenge/

Prematurity Awareness Month 30 Day Photo Challenge, Day 6

DAY 6: Food

While they’re in the NICU, premature babies have several milestones to meet before they can go home with their parents. Before NICU discharge, premature babies need to be able to breathe, eat, and keep their temperatures stable.

Breathe without oxygen: One of the first milestones that many premature babies meet is being able to keep their oxygen saturation high without needing extra oxygen or other respiratory support. Many preemies need some kind of respiratory support soon after birth. Some babies may only need extra oxygen for a short time, but others need it for longer. Babies who are very small or very early at birth are at risk for a chronic condition called BPD and may need extra oxygen even after they’re ready to go home.

Luckily we did not need to be intubated, even though I did not get any steroid shots before BB#2 was born. BB#2 did not get any surfactants either after he was born. He was on CPAP for a few days and after that he got oxygen into his incubator for a few weeks. And finally he was breathing on his own without any help, any plus oxygen. He did not develope BPD.

Maintain a stable temperature: Most premature babies need to sleep in an incubator to stay warm. Premature babies aren’t able to keep themselves warm. It is a milestone that is based on weight more than gestational age, and most babies are able to keep themselves warm by the time they weigh about 4 pounds.

Take all feedings by mouth: Premature babies are not as strong as full-term babies and aren’t able to coordinate sucking and swallowing until about 32 to 34 weeks gestational age. Most premature babies are nourished with TPN (total parenteral nutrition, a type of IV fluid that provides total nutrition to someone who cannot take any nourishment by mouth. TPN contains sugars, electrolytes, vitamins, proteins, and fats, and can supply all of the nutrients that the body needs. Premature babies often receive TPN while their intestines mature. The TPN will be given through an IV, an umbilical catheter, or a PICC line. When milk feedings are started, the amount of TPN that a baby receives will gradually be tapered down as the milk feedings are increased.) at first, and they are fed through a feeding tube until they’re strong enough to drink from the breast or from a bottle. Before babies can be discharged from the NICU, they should be eating from a bottle well enough that they are gaining weight steadily.

BB#2 had the most problems with feedings. He had a feeding tube for about 6 weeks, through which he got my breast milk that I pumped for him around the clock. He also received parenteral nutrition through his PICC line for weeks. In the begining he had problems with digesting my milk. He would get sick from it. So there would be days he did not get any milk, just the TPN. It was the most awful feeling that I would take him the milk and they would say he cannot be fed through his tube yet 😦 We had to run at this feeding issue 3x times before he finally stopped getting sick and could start getting my milk, but this took about the first 10 days of his life. They also started to investigate if he has NEC (Necrotizing enterocolitis, where portions of the bowel undergo necrosis (tissue death)). They said the x-ray did not prove this, and finally he overcame the problems and started digesting the milk.

Eventually he learned to take a bottle, and a few days before his discharge he started learning the art of breastfeeding, which he continued to do untill he was 9 months old. My milk however was not enough so we had to supplement with formula and pumped milk, so our feeding routine was a pain in the…. First measure baby, then breastfeed, measure baby again, calculate how much he ate, then make some formula, feed to baby. Then pump the remaining milk that he left inside, because he was too tired to work that hard 😦

So as you can see feeding preemies are not easy. Not easy for the baby, or the Mom or the doctors/nurses.

And still we came out lucky because after the initial problems we did not develop reflux or any oral aversions and we were not even colicky

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BB#2, 11 days old. You can see the feeding tube in his mouth and the TPN went into his arm. (not the one pictured, the other one).

If you would like to join in the challenge here are the details:

http://anotherdayinmommadise.wordpress.com/2014/11/01/prematurity-awareness-month-30-day-photo-challenge/